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,l ID'WAHJllAliCHNNKllJI-Wednesdas tumâ€" iii gins ' Pha More than an ambassador W W l . Muscular dystrophy doesn’t keep local man from helping others 9 7 7 W 7 7 "A ‘ By BoaVitMW‘ . (ham mII , . Rev. Martin lunge to I ason lomesch knows he is lucky to speak at WLU June 1 1 l be alive. and the ambassador for . l I the Waterloo Region Walk for Miis- .7 “I“ ‘ The Rev. Martin lunge. general secretary of the ‘ cular Dystrophy this Saturday is doing . _ ‘3‘? ,, Lutheran World Federation â€" a communion of ‘ his host to make sure what happened '. f‘ . _ *1 e 9‘ more than 72 million Christians in 144 ChUI’ChOS in to hiiii doesn't happen to someone " r; , ~ ~ 3 ”countries â€" is scheduled to deliver a public lec- else Wllh the disorder .A ' . _, w ture at Waterloo Lutheran Seminary on lune 1]. at t lhat's why the 22-year~old Waterloo - 3 f . ' 7:30 pm. l native. who has Duchene Muscular § ,‘ During his talk. entitled “Global citizenship: the l Dystrophy. has worked so hard to raise i V " - role of faith communities in the public space." . money and awareness about the neu- ‘ lunge will speak about the role of faith groups in l ronitiscular disorder and the latest . ' the community and discuss some of the federa- _ developments in treatment and theta a , .. g , tion's work. ‘ pim for those affu‘ted ' . . {HM Born in Chile. hinge is the first general secretary . He's confined to a wheelchair but ' "g. from latin America. He will be travelling to Water- l leads an active life online through at ‘5 ‘ loo to receive an Honorary Doctor of Letters sot ial media. highlighting things like a ‘4“: "~ - 1' degree from Wilfrid launer University at convoca- l oiighing machine that helps those Jason, centre. Sue and Dave Tomb are all part of Team Jason at Waterloo Region tion on lune 12. for his W0“ building democracy In . is 1th must iilar dystrophy keep food Walk for Muscular Dystrophy this Saturday. Jason is an ambassador for the event. (Ihile 311d advocating “if d9” relief for many poor l trotti ending tip in their lungs, ”mm“ ”‘0'” countries. l l'liat‘s what led to his latest health their behalf when they were told he was diagnosed with [)uchene, and rungs; "ilk l5 ”99 and 09°" ‘0 the PUNK“ For l st are (in Oct. it). Jill: he was nished would have to wait a year to get into learned he was allergic to anesthesia. i more information Contact [)on‘nda Kruger All?“ 3‘ l to t.r.ind River Hospital tintonst ioiis care in l5reeport. She convinced the which is a common side effect of the l 51943340710 PXl- 3241' or email (”“12“ l and barely breathing. doctors that his family could take care disorder. l allentiwluca. ‘ lht- gent-tit disorder makes tour of him at home and he was able to "It was then my real )oum ' an," . iniist his deteriorate. and his parents return to his beloved pets lasper. the said lason. “I attended Kidszflzimand waterloo semce centre illlll priinan (art-givers. MW and ”the golden retriever. Glider, the parrot, and was able to walk until the age of eight. didn t rt-ali/e some food had gone \‘iiki. and albino hedgehog. when my muscles became too weak to Open House June 12 doisii the wrong pipe and into his [he surgery means that lason can stand. l . .. , . . . lungs Loon didn‘t hate the illillllV to barely talk above a whisper now. bill “I started mth a manualwheelchair ; [he ( ity of “‘3'”ka annual 50"“? («t‘lllft‘ i ough it out his tnoni anti dad are able to quickly and soon after needed a power wheel 9P9" House '5 8" fl” lune H 10 d'm' “’ l pin. ‘“ H“lll‘ll sou lime tiiiisi ular distio translate what he has to say He also chair to get around as my arms and 3‘5 lextngtonLrt. l phi \titl i.int tough \t-r\ sit-ll. so the has a multimedia centre that would upper hotly muscles were getting l x ”‘0‘" ditt'ndlngthisevent “a” takeatourofthe ‘ toot] sits in there " said \iie ‘We didn't make a lot of people iealoiis. and he is weaker.” l “WK“ ”3"”? anti greenhouse and learn more rt-.ili/i- him ill Jason really “as when he able to (onimiinii ate through email But that hasn‘t stopped him from l about some or the 3"““93 the f“) Plfmdf‘fi lnfor . “AN tiisliml to the hospital " and uses a \pl‘( tal program to put advocating both on his behalf and for . mation about envtronmental 'nlllal'VM “uh 4‘ [1 stated there and led to .ispira together all his thoiightson screen others. 1 "meal" management ““1 “1”" "WWW “1“ h“ nonal plii'lllllliilld and .i diagnosis that "liy the grtit e of (rod. and with lbe disorder afft-t ts one in ”$00 l “Nab” . ‘ he \ms in the last stages ot lliit lll'llt‘ many prayers and support of ill) par boys. and his goal is to raise awareness ”“5 ‘faitiilvoriented open house “'1” feature \liist tilai ll\\ltlipll\ llis ldlllll‘y was ents. friends. fariiih and (hiirth. l stir about the advances in respiratorytreatr . fir“ equipment dump ”ml“ sweepers. “ m“ ket !t tlll ht- li.itl 3‘! hours to ll\l' x I\ ed this ordeal whit h .inia/ed the merits for the disorder and to make 1 ml“ and backhoes. along mm balloons. free V’l’ but lasoii is .i lighter and he li.it| tin dot tors ‘ said lawn in an t’lltdll "but sure that sufferers know about the l ”)m‘md face painting. 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