Wï¬ 7 7 l WAI'ERLtX) cumutcu: - Workma- 4. May 26. 2010 ~ ll fâ€"~~â€"~râ€"~ l . xi it i“ i( Illl(l\lt lï¬ 0 (we. W,,,‘,ca__c#_‘__#_ ‘ , . ) . l earnln to cope i ,-\l\()lJ.\l) l l .- , i _______â€"____J i ~â€"â€"â€"â€"â€"‘~â€"â€"â€" , BY BRITTANY Damon l spat tut to the t "Itronit'le Herit 8 Da . i tiirst glance Sophia Schul7 at tile “blic flare i appears to be a typical liiâ€" . 3 p sq ] tnonth old child But if you were i t M “ i“ “l“"id a did Wlih llâ€; it would I? The City ofWaterloo celebrates its 153m hirth- i become clear that her life is anything 3 day and the one-year anniversary of the Waterloo in†â€(mildl- ‘ y _ ~. - public square with a special Heritage Day celebra- l _ “will“ was ‘l'i’glll’fl'd Willi “it‘ll“ g ‘ A tiott on May 29 from 2 pm. to 4 pm. at the Water» i liltrosis. a multiorgan disorder-that % ilk loo public square. llflmimll‘ “mi“. 1h“ lump and ‘d'kli‘ï¬â€˜ «a a: . The event features performances by the New ll\‘t‘ systerti, at birth. She is required to '. ,- ‘ V iv Hamburg v0 Band and KW Glee (a singing group . Wk" 13 ml“ ddâ€) l“ ht’li’ d'gc“ h†Q N, 33: â€' " "a made up oflocal highâ€"school students), plus music food. along with two-hours of chest sâ€. ~ “ ,J‘ * ' byGlen Sculls and Ed Koenig, therapy. A“ 500th get» ‘Jldffi_lh'5 â€um“ '\ " V» ‘ ,"' l-‘or more information, contact Tracy Suerich, her will increase to 20 to Iii) pills‘a day.†‘ , \~ \~,‘ ax" ' the squares programmer. at 51943864 171 it“, 27], 1 Wht'115“l’hla balm?“ m'ldllf '†, w / or tracy.suerichéfwaterlooca. or go to with any form of runny nose or cough, , W, A, __y Mâ€; _, “Wyattwaterltmca/publicsquare. 1 her parents. Katie and lason Schtill. _‘ f u. » j must double the amount of chest therr \ i i any petitioned each day. [his proce» "" l‘ k‘w , . dry ' ' ditre tiiiitinttes until the cold sympâ€" \ 3 ' Hen Slgrllng backs , , . a t . l 1- toms disappear ' v , . " ' at COHEStoga Mall "We've been doing this since she ' _ \“ ' " ‘ i was only it couple oi weeks old, so she _ ‘ M - a“ local politician and authorlohn Hendry is sign» is pretty used to it." said Katie ' ‘ ' ° . / ing books at (Ioles Bookstore in Conestoga Mall it these daily routines are not fol? '\ - ' ~ this Saturday from 12:30pm. io3130 pm. lowed regularly. Sophia wouldn't he I» y .. %_ Hendry‘s hook is called Held Bw‘khyiVOIthK n i able to digest any oi the tats or proteins "3 g .‘ When Uniquely Normal' Becomes Exceptional and l iii her food. Secretions of thick mucus _ ' “A“; . is based on the life of his youngest son born with i could also build up in her lungs, which ‘ A ' cerebral palsy. i would lead to sewn“ respiratory proh- The public school board trustee will hold . leins. another signing on lune 5 at Chapters on 428 King \ "luckily, Nophia hasn‘t had any Street North inWaterloo. mm" â€W damage h†lungs in a more Katie and Jason Schulz have become some of the top cystic fibrosis fundraisers in . l permanent way." â€1d 1350“- the country, inspired by their daughter Sophia. “WWDWO'O Former GlObe editor Katie and lasoti say coping With Sophta's disease has been overwhelmâ€" Their team is called “Zoom Zoom", approximately 3.500 Canadian children presents ClGI lecture ing, but it's something that they have which evolved from a song Katie and and young adults have this genetic dis- ' _ now accepted as part of their everyday lason would sing to their daughter ease. l'he Centre for international Governance lnno~ lives. before her inhalation treatments “We're hoping that Sophia's future is vation presents 2? Signature lecture mm Douglas "This is our ï¬rst child, and it's some- The goal across Canada is to raise long and bright, but the reality is that (hold-former editor of the Globe and Mail Report thing we have to do." said lason. “We $2.5 million. All of the money is put half of the kids living with cystic ï¬bro- on Bustness and REV)“ 0" 5115171955 Magazine. don’t really know any differently." toward research to find better treat- sis today will not live past their forties." The lecture takes place May 27 from 7 Pm 10 9 S()phl3"s parents have taken on the merits and to prolonglife. Katie said. P-m- . y _ _ . y c. challenge to raise money in hopes of “That's our hope, that one day there “That‘s why it‘s so important to us He W1" be sharing his experience and "flights ï¬nding a cure for the disease. will be a cure. or at least a really good that as much money as we can get 0" lndia. . ~ . they are participating in Kitchener, treatment so that [the diseasel doesn't towards research, gets there," (mold Will be assessing and making recommenâ€" Waterioo's Great Strides walk, part of a impact Sophia‘s life as much as it does The Great Strides walk takes place dauons on business. as well as political and securi- nation~wide walk for cystic fibrosis. now." said Katie. May 30, at 9 am. inWaterloo Park, W relations'between the "1d†and Canada. A and have raised over $5,000 for the "it's such a variable disease. so even The Schulzes will continue to raise AdmlSSIOH is free and refreshments Will be cause ibis is the sixth-highest amount though she seems healthy right now, money until the day the event takes SCWGd- of money raised by a Canadian team you just have no idea what the future place, and registry is open for every- To guarantee . YOUr seat. RSVP at this year holds." one. Donations towards team Zoom httpzl/gooldeventbntetoom or call (519) 885-2444 “We started this for the first time Cystic ï¬brosis is the most common 700m and cystic ï¬brosis research can ext 379- last year, and it was so successful that inherited fatal disease affecting young bemade at: l we did it again this year,“ said Katie. 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