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Waterloo Chronicle (Waterloo, On1868), 18 May 1983, p. 5

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Carol Pleau looks over some of the articles for sale at a garage sale last week at 30 Ellis E::wn w:t.;rl;;“:i';;vsa;n'h;ld eva::l;;e'a'r I;y the Burnell! fa?nily to raise money for the Cystic Fibrosis Foundation. ols u. //, Serving with personal : //_ _ Serving the communit with personal and professiona for over 35 years _ * T*~ ~ * Edward R. Good Local CF chapter honored as annual campaign l . € | gets off the ground Jim Erb Funeral Home Limited é\ 171 King Street South, Waterloo â€" 745â€"8445 Pat Arbuckie photos Edward Good Pat Arbuckle Chronicle Staff * The Waterloo County Chapter of the Canadian Cystic Fibrosis Founâ€" dation got its May fundraising campaign off to a fitting start this year. The local chapter captured the Fred Blizzard award at the foundaâ€" tion‘s annual convention held May 5â€"7 in Chicoutimi, Quebec. The award, named in honor of a pastâ€"president of the CF organizaâ€" tion is given to a chapter outstandâ€" ing in its efforts to achieve the four main objectives of the foundation, fundraising, increasing public awareness, parent support and reâ€" search, explained Karen Fries, who with her husband Greg serves as president of the local chapter. Cystic Fibresis is an inherited, lifeâ€"threatening disease that affects breathing, digestion and the producâ€" tion of fluids within the body. Progressive lung damage can lead to serious complications, said Fries, and because the disease affects the digestive system, it is difficult to achieve adequate nutrition. At presâ€" ent, C.F. is incurable although advances have been made in treatâ€" ment and therapy. Until recently, children affiicted with C.F. were forced to consume vast quantities of pills, an average of 90 per day. Most of these were vitamins, diet supplements and anâ€" tibiotics to fight infection. More effective drugs, however, have alâ€" lowed C.F. sufferers to lead more normal lives. Now, the average child takes only about 20 pills, supplemented by daily therapy. The therapy programs include aerosol mask treatment for inhaling antibiotics, postural drainage, treatment with an electric percusâ€" sor to loosen the mucous buildup and breathing exercises. And deâ€" pending on the amount of lung damage that has occurred, those with CF. are encouraged to take part in such physical exercise as swimming and running. "The more active they are the better,"" said Fries whose son Jamie, a C.F. sufferer, plays hockey on a local team. The future is looking brighter WATERLOO CHRONICLE, WEDNESDAY, MAY 18, 1983 â€" PAGE 6 Save on e Patio Doors e Storm Doors & Windows e Replacement Windows / 604 BELMONT AVE.. KITCHENERâ€"742â€"4457 *! PILKINGTON GLASS CENTRE l Z Fries describes the Canadian C.F. Foundation with 44 chapters across Canada as ‘relatively small in comparison to some charities." The local chapter, celebrating its 20th anniversary this year, has a memâ€" bership of 50 volunteers who orgaâ€" nize social events, implement public information programs and particiâ€" pate in fundraising events including the National May campaign. every day for C.F. victims and their families, according to Fries. In the past, few children with the disease survived beyond childhood. But with the development of more effective treatments, 25 per cent of the C.F. population have reached young adulthood. Each year, the group holds a fundraising dance and organizes a Christmas party and family picnic for C.F. children and their famiâ€" lies. As its contribution to the May fundraising drive, the Waterloo chapter sent out 1,800 letters written by Robbie, this year‘s campaign poster child, to potential donors in the Kâ€"W area. The group also provided information about C.F. at last week‘s Canada Health Day exhibit in Market Square in Kitchâ€" ener and a garage sale held Friday and Saturday in Waterloo raised approximately $2,000 for the C.F. foundation. s Still, even though 76 per cent of money generated goes directly to research, raising funds for the foundation continues to be an uphill battle, said Fries. "There are no visible symptoms, C.F. victims are not in wheelchairs and people do not recognize the seriousness of the disease," she exâ€" plained. The Waterloo chapter of the C.F. foundation urgently needs volunâ€" teers to help with its May fundraisâ€" ing campaign. For more informaâ€" tion, call 885â€"6106. Last year, the foundation failed to raise the $3.3 million needed to support research in Canada and $500,000 in research projects ‘"of good potential value"" had to be turned down, said Fries. ‘"Research is the hope for these kids," she added. SAVINGS

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